Online references & publications:
Journalism
“Neurotech DIY: Fixing Your Own Implant — As the Neurotechnology Market Expands, What Happens to those Left Behind”?
(Dan Fox, Nature, June 2023)
Selected Scholarly Publications
Merner AR, Kostick-Quenet K, Campbell TA, Pham MT, Sanchez CE, Torgerson L, Robinson J, Pereira S, Outram S, Koenig BA, Starr PA, Gunduz A, Foote KD, Okun MS, Goodman W, McGuire AL, Zuk P, Lázaro-Muñoz G. Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial. Brain Stimul. 2023 Jun 15;16(4):990-998. doi: 10.1016/j.brs.2023.06.007. Epub ahead of print. PMID: 37330169.
Boulicault M, Goering S, Klein E, Dougherty D, Widge AS. The Role of Family Members in Psychiatric Deep Brain Stimulation Trials: More Than Psychosocial Support. Neuroethics. 2023;16(2):14. doi: 10.1007/s12152-023-09520-7. Epub 2023 May 26. PMID: 37250273; PMCID: PMC10212803.
Hitti FL, Widge AS, Riva-Posse P, Malone DA Jr, Okun MS, Shanechi MM, Foote KD, Lisanby SH, Ankudowich E, Chivukula S, Chang EF, Gunduz A, Hamani C, Feinsinger A, Kubu CS, Chiong W, Chandler JA, Carbunaru R, Cheeran B, Raike RS, Davis RA, Halpern CH, Vanegas-Arroyave N, Markovic D, Bick SK, McIntyre CC, Richardson RM, Dougherty DD, Kopell BH, Sweet JA, Goodman WK, Sheth SA, Pouratian N. Future directions in psychiatric neurosurgery: Proceedings of the 2022 American Society for Stereotactic and Functional Neurosurgery meeting on surgical neuromodulation for psychiatric disorders. Brain Stimul. 2023 May-Jun;16(3):867-878. doi: 10.1016/j.brs.2023.05.011. Epub 2023 May 20. PMID: 37217075.
Wong JK, Mayberg HS, Wang DD, Richardson RM, Halpern CH, Krinke L, Arlotti M, Rossi L, Priori A, Marceglia S, Gilron R, Cavanagh JF, Judy JW, Miocinovic S, Devergnas AD, Sillitoe RV, Cernera S, Oehrn CR, Gunduz A, Goodman WK, Petersen EA, Bronte-Stewart H, Raike RS, Malekmohammadi M, Greene D, Heiden P, Tan H, Volkmann J, Voon V, Li L, Sah P, Coyne T, Silburn PA, Kubu CS, Wexler A, Chandler J, Provenza NR, Heilbronner SR, Luciano MS, Rozell CJ, Fox MD, de Hemptinne C, Henderson JM, Sheth SA, Okun MS. Proceedings of the 10th annual deep brain stimulation think tank: Advances in cutting edge technologies, artificial intelligence, neuromodulation, neuroethics, interventional psychiatry, and women in neuromodulation. Front Hum Neurosci. 2023 Jan 27;16:1084782. doi: 10.3389/fnhum.2022.1084782. PMID: 36819295; PMCID: PMC9933515.
Straw I, Ashworth C, Radford N. When brain devices go wrong: a patient with a malfunctioning deep brain stimulator (DBS) presents to the emergency department. BMJ Case Rep. 2022 Dec 26;15(12):e252305. doi: 10.1136/bcr-2022-252305. PMID: 36572446; PMCID: PMC9806045.
Schönau A, Goering S, Versalovic E, Montes N, Brown T, Dasgupta I, Klein E. Asking questions that matter - Question prompt lists as tools for improving the consent process for neurotechnology clinical trials. Front Hum Neurosci. 2022 Jul 29;16:983226. doi: 10.3389/fnhum.2022.983226. PMID: 35966997; PMCID: PMC9372354.
Online references & publications:
Journalism
Long-term Device Support for Study Participants & Technology Users
“Their Bionic Eyes are Now Obsolete and Unsupported” (Eliza Strickland & Mark Harris, IEEE Spectrum, Feb 2022)
https://spectrum.ieee.org/bionic-eye-obsolete
Note on this topic: Resources related to the NIH BRAIN Initiative Workshop, “Continuing Trial Responsibilities” (May 2022) may be found here: